Re: [PsoriaticArthritis] Question???

2008-12-03 19:47:49

In <001001c2c548$1460f190$9fe6a518@tropicalgoldens
I felt some of this when I took it.
There are a lot of nasty potential effects from MTX. I'd recommend that
you read the side effects materials that you hopefully received with it.

Re: Digest Number 1691

2008-12-03 12:00:25

I am organizationally impaired... so I get all of my prescriptions
filled at one pharmacy. At the end of the year, I ask for a print-
out of my prescription history for just that year. It has every
prescription- the cost- the amount insurance paid- the amount I paid-
and the annual total. While great for tax purposes- it's a little
disheartening to see three pages of meds with such a large final
total! It does make you appreciate the your insurance tho!
Kirsten

Re: Psoriasis Meds

2008-12-03 01:15:44

When my scalp itching was at it's worse- my Godsend was the stuff you
leave on overnight... it's P medication suspended in peanut oil. You
wet your hair, massage the oil in, put on a shower cap (preferrably
one with flowers on it so you can at least get a good chuckle) and go
to bed- put a t-shirt over your pillow- it tends to get a little
messy. I really help the scaling especially- my head used to feel
like my scalp was cracking apart- but this really helped.
Kirsten

Re: Very unorthodox solution for fatigue...

2008-12-03 00:46:31

I was Adipex for about 3-4 months about 3 years ago. I lost about 30-
40# on it (but quit b/c it was so expensive- insurance didn't cover
it). It was enuff tho to start me on a 70# losing spree. My
cravings have never fully returned (but the fatigue sure has).
Unfortunately, I'm on ADD meds as well and can't take it any longer
but... don't be surprised when the effects start to decline- it's a
quick one to plateau on. Of course you can always up the dose- but
sometimes going off of it for a day or two help increase the effects
without increasing the dose.
BTW- I saw a bariatric specialist (NOT a surgeon), he's the one that
started me on the Adipex.
Anyone else have increasing fatigue with PMS besides my mother and I?
Kirsten

Re: [PsoriaticArthritis] Insulin syringes for use with Enbrel

2008-12-02 12:23:07

I never really had a problem with dull needles in my Enbrel kits. I was
told not to substitute needles because of the unusually large protein
compound, which is the active ingredient, can and will be damaged if forced
through a smaller needle. This can make the drug less or even
non-effective. I would certainly contact Immunex before modifying their
designed protocol. R.E.

New Group Member and Fred

2008-12-02 08:09:30

Fred,
I'm jumping in here, I know, and admittedly I have not been keeping up
lately, but I was skimming through a message in which you stated that you
were using Plaquenil. I was just at my rheumy's office fussing about how
bad I feel, asking him to help me, and he mentioned Plaquenil and then said
I couldn't take it because I have psoriasis. Just thought I'd pass that on.
Feel free to tell me to butt out.
Cheryl

RE: POLL ON LOCATION

2008-12-02 03:59:10

Hi all! I live about an hour north of St.Louis, pretty close to St.
Charles county, that where I work. I am doing alright considering I
cannot have meds right now due to pregnancy. It is not fun thou. I
find my knee and hip hurts like the dickens when one of those snow
storms move through. I have had some trouble with my back since
about two months after stopping meds, I had a steriod shot that was
supposed to be good for three months so I think that is what
sustained me those last two months. Anyhow I have been having
horrible headaches since this artic front has moved in. My worst PA
spot is (pretty much the whole) spine, so I think that probably
accounts for the bad headaches. If pregnancy gives relief to PA, I'd
hate to see what kind of shape I would be in, not preg. & no meds.
That is the thing I keep telling myself so I don't get too crabby
dealing with the pain. I know I am lucky in comparison to others, I
have (for the most part) a supportive family, insurance, and I was
lucky enough to find a job that I could do with this. I have not
been posting, because my pain right now is so trivial compared to
what others are going through that I'm trying to avoid the
temptation to cry on shoulders that are more sore than mine! :) :)
That's why I've been lurking for the most part. I hope that this dog
gone weather warms up soon and gives us some relief soon!!!
Take care and God bless,
Merribeth

Re: [PsoriaticArthritis] My Enbrel success story

2008-12-02 02:07:45

I had very similar results when I started on Enbrel almost two years ago.
Unfortunately, last September I had my worst flare up since being diagnosed with
PA. My skin is getting bad again too. I guess I'm probably one of the earlier
people to have gone on Enbrel, and my Rheumy is the professor of rheumetology
for the Medical University of South Carolina, so he is taking a very active
position in monitoring and logging my visit- to- visit results of the meds I'm
on. He added azulfidine to my regimen to try to assist the Enbrel's
effectiveness. It doesn't seem to be working. Sorry to be a bummer.... but
please, enjoy the effects of the Enbrel now, it looks to me like it will
probably last for most of us for a year or two, then lose effectiveness! :(
"Angi <angicakez@...
weeks ago, I've done 4 injections, and most of my
psoriasis is gone! My PA has also greatly improved. After almost 7
years, my index finger is almost the same size as the rest of my
fingers, though it's still bent. My other infected joints have also
become less swollen and painful. I was apprehensive about giving
myself injections but it really isn't bad at all. For all of you who
have started Enbrel and seen no results, hang in there! Hopefully
you'll see similar results to mine. For others of you who are
deciding whether or not to try this medicine, I say go for it. I
haven't had any side effects so far and my relief is well worth a
small prick twice a week! I'll keep you all updated. Take care of
yourselves and good luck.
Angi

Re: [PsoriaticArthritis] Coal tar free!

2008-12-01 15:52:31

In <104350873201@...
Now Ron, did you REALLY expect me to see your note tacked onto my E-mail?
It's only rarely that I would even open one that I wrote. Even rarer that
I would see something tacked onto the end.
That's a contradiction. The suit by the AG's office was because the coal
tar shampoo manufacturers FAILED to WARN the public about exposure to a
carcinogen. If it's a carcinogenm why WOULD the NPF not only not warned
us about it, but opposed compliance with state law that required it.
There's a difference between the two. One is a voluntary exposure and
rarely NEEDED. In fact, take one (coal tar), and you are advised by the
manufacturer to avoid excessive exposure to the other.
But not being warned by the manufacturer that coal tar was a carcinogen,
I'll admit to using it more than recommended, and even letting my wife and
son use it, even though there was no medical reason to justify the
increased (no matter how small or large) risk.
For those of us with immune systems out of whack, it's especially
important to disclose the potential risks, so that we can make informed
choices. it's entirely possible that because of our immune system
problems, coupled with the medications that we take, our risk from
exposure is much higher than the normal person.
But unless you were told that that's any reason NOT to use coal tar
shampoo, there would be no reason to stop it once it really wasn't needed,
unless the issue was cost.

Chiropractors

2008-12-01 04:11:32

In a message dated 1/26/2003 4:42:33 AM Eastern Standard Time,
cdyost@... writes:
Thanks Cheri,
That is just what I actually intended on doing.
Janet