Rheumy appt

2008-02-29 20:39:08

Well, I went to my first Rhuemy appt. and personally it sucked. She said she
saw nothing, what I told her fit no profiles, and I should see a psychiatrist
because if we are not well mentally, we're not well physically!!! But yet she
took 9 viles of blood and took 24 x-rays! I'm so frusterated it's not funny.
She just put me on another AI and said we'd come up with a gameplan when the
results came back... she mentioned mtx as a trtmt. No Way! she can come up with
something else. I want another child, and I can't if I start that crap. Oh
well thanks for letting me rant!
Melissa
"A hundred years from now it will not matter what my bank account was, the sort
of house I lived in, or the kind of car I drove..... But the world may be
different because I was important in the life of a child"

sensitive question... need answers...

2008-02-29 09:21:56

For anyone with any suggestions (or similar experiences),
I would really appreciate 'any' suggestions or advice. I have for
several years been bouncing around from my Ob-gyn, Dermatologist, my
Internist, and both Rheumies... all with no help. As I have
psoriasis in 'embarrassing and private' places it is very hard to go
around exposing myself to doctors for advice... they all agree my
problem is psoriasis and the only advice I have had up until now is
to use a steroid cream. I have just come to accept it and the pain
that goes along with the irritation, but maybe someone has some
suggestion. There seems to be no limit to where the psoriasis wants
to go... as well as the psoriatic arthritis. I can handle so many
problems, but some are just pushing the limit of tolerability. Maybe
there is no solution, but this site has given me hope when I was
running out of it. Thanks to everyone on this site. Happy holidays.
Oh, concerning acrylic nails and nailpolish, I was told not to use
either one of them for several reasons... by covering the nails they
are not so free to 'breath', chances of fungal infections increase,
and the chemicals in nailpolish only irritate the skin around the
nail... even healthy non-psoritic nails. Maybe I was misinformed,
let me know, maybe I can begin covering up my nails as well... for
certain occasions, I am not much of a 'nail' person. Never even
thought of using polish until I developed the 'nails with minds of
their own', ha.
Again, thank you to everyone who has responding to my messages and
all others who have 'posted' informative information.
Lisa

my that the lifting in my nails was from a fungus. Know I know it's
classic Psoriasis in the nail bed.

Shoes, sore toes and toenails

2008-02-29 03:58:35

It just struck me, in the last year my feet have begun
to bother me. All my shoes are uncomfortable. Two
years ago I broke my right ankle in three places and
broke my right leg about 3 or 4 inches above the
ankle. At the same time I severely sprained the left
ankle. I stepped in a hole in my yard with both feet.
I tried to hop out but ended up with the fractures.
Had to have surgery with a plate and 24 screws in my
leg. I was in a wheelchair for 2 months, on crutches
for another two months and then had to go to physical
therapy to walk again. Anyway, both ankles
immediately set up with arthritis (according to the
orthopedist who did my surgery) and from then on my
ankles and feet swell. So I thought that was why my
shoes were so uncomfortable...but now I am wondering
if it is a combination of that and the PA. I don't
have a problem with fingernails or toenails yet ..but
last year I did have what the doctor thought was a
fungus of one of my big toenails. He gave me some
lamisil cream to put on a cotton wad and push up under
it to see if that helped. It did help as the nail had
lifted in the corner a little bit. I don't know what
they look like now as this past summer I had acrylic
toenails applied so my feet would look nice in sandals
and my pedicure would last longer. Worked great. I
am going Saturday to have what is left removed and
just a regular pedicure with polish done. Guess I
will get a look at them them. But all the other
toenails besides that one looked great last summer.
I also wear acrylic nails on my fingernails because I
cannot grow nice ones and with the deformities from
the arthritis I am self conscious about how my hands
look. My real nails are fine though...just thin and
brittle...no holes, pits or anything. I will keep a
close look at them though in between re-dos.
Sharon

pain under toenails

2008-02-29 00:27:58

What is Enbrel? Is it similar to Dovonex or Ultravate?? I am hoping
that the Enbrel can help me with my pain under my toenails do you
just put it under the nail? Will putting it on top of the nail have
it absorb down to the skin where it is impossible to reach going
under the nail?... or maybe I should get them permanently removed
like others have suggested. I'm not quite sure what to do as I'm not
sure if having the nails removed will stop the pain, as it is very
severe pain- posssibly arthritic pain .No doctors seems to know for
sure. I went for a 35 minute walk today though for the first time in
6 months- my feet weren't too bad. I am at the point where I am not
going to let the fear of more pain stop ruling my life..even if I do
get into more pain because of physical activity. If it is unbearable
I just stay at home though. Kerilie
[Moderators note: Please see http://www.enbrel.com/ ]

new member to the group

2008-02-28 21:58:26

Hello all
I have had psoriasis for 12 years and PA for 11 years. I have been
on Methotrexate for about 7 years. I was taken off for about a month
several years back because of high liver blood work. My Psoriasis
immediately got worse. Doctors started me off at a lower dose until I
stabilized at 15 mg. once a week. I am the US Air Force and have
spent the last few years in Okinawa Japan. The high humidity helped
with the PA. Stress from a divorce caused a flair up of Psorasis and
PA. I wanted to raise my Methotrexate but my doctor wanted a liver
biopsy before he raised my dosage. Biopsy came back good. I have
recently moved to NC and my doctor tells me that she does not require
biospys with her patients. I have notice a lot of messages with
people having bisopsy's. I have tried many anti inflammatory drugs
through the years to help with the pain. Most cause ulsers Feldene
and Motrine. My doctor has recently prescribed Vioxx. I can't notice
any releif. My Lt.thumb, Lt. big toe, 4th Lt. toe, Rt. wrist and back
have gotten worse. Stress is my main battle. I am a 37 year old
single father of three children (15 girl, 14 boy and 7 boy). Though
my kids are great as most of you know they can all cause stress. As
well as being in the Military and having to be concerned if I will
deploy with the way things in the world are now. My faith in God is
what keeps me going I know how Blessed I am and I thank God for all
he has done for me.
I enjoy reading messages and finding out new treatments that are out
there and some successes and well as failures. My doc has raised my
Methotrexate to 17.5 MG once weekly I will continue blood work and
hope all will work out. I am ready to give up on Vioxx. It doesn't
seem to be helping. I have a Dr Appt next month and will possibly
find out something then.
Thank you for giving me a method of venting and sharing with some of
you about our common problems.

Reminder for Posting Guidelines

2008-02-28 06:24:30

Dear Friends,
Please remember that when posting there are RULES to be abided by.
1. In the Subject Box DO NOT put: Digest #
1234 or the like (this means nothing to nobody) Be specific as to your topic.
2. Type OT Boldly if your message is in any way off topic.
3. Use of profane or suggestive language is prohibited since this site is
completely
kid safe. We do in fact have some teen and preteen members now and we want
them to be comfortable at least reading if not posting yet.
4. With the exception of the newsletter, please limit the number of your
messages to three per day, or just save up your thoughts and send a couple of
big ones instead of a lot of little ones. This is less work for our
completely volunteer moderators who must read each and every message and
edit it before it can be posted.
Thank you in advance.
Michelle Atwood Stack
List founder

re orthotics

2008-02-27 22:52:59

A while back, my podiatrist fitted me with orthotics because she said I had
excessive pronation (rolling in of the foot due to collapsed arches). She said
it would relieve some of the stress on the lower back and hips and it has
certainly done that. I was getting a lot of painful bursitis in the right hip
and most of that has been relieved. The trade name of the orthotics is VASYLI .
They are available world wide and information call numbers for the US and UK
printed on the box are:
US - 1800 872 3633 UK: 0800 435 176
You will probably need a podiatrist to fit them as they are heat moldable so
they can be customized.
Regards, Gordon

PA in the Spine

2008-02-27 22:40:12

Hi Gordon,
I unknowingly had PA in my lower back for years and it is now
starting in my neck. This year is my first major flare up and I'm
debating about talking to my rheumatologist about going on something
stronger than NSAIDs. The pain in my back is worse when a storm
front comes in. I was near Chicago visiting relatives for our
Thanksgiving holidays. I could hardly walk the day after
Thanksgiving, the pain was so bad. To top it off, it seems to
affect my intestines. I get intestinal pains that rival the labor
pains of childbirth when my back acts up. I'm seeing a specialist
to see if they are related or separate issues.
I'm sorry to hear all that you've been through. Take care and best
wishes for the holidays, Diane

sulfur vs sulfa

2008-02-27 13:43:52

hello all,
just giving my personal opinion, no medical facts.
in talking about the drugs that might have sulfur, it is
actually sulfa, a penicillin type drug. it was used in the
60's for people unable to take penicillin. it is still found in
a lot meds. i have noticed in the time i been in this group
a lot of us are allergic to sulfa, myself included. my mom
found that out when i was a little girl. most drs put sulfa
in big red letters on my charts, but the first rheumy i
went to ignored it, or whatever, and put me on plaquenil,
big mistake. it took me 3 months and so much pain to
get over the reaction. i don't believe my arth. would ever have
gotten so bad if i hadn't taken the plaq. now, whenever i
start a new med, i talk to the pharmacist, and i get as much
info on the internet as i can. everyone should do that, because
the drs don't always pay attention, and it is our responsibility
to ourselves to know exactly what is going in them. i have
found out that if i don't stick up for myself no one else will.
have a good week everyone
susan in ohio

New Rashes forming

2008-02-27 11:31:54

I've started getting small rashes over the past couple days. The
first was on my chin (which is almost gone), now I have a small one
on my left elbow and left leg (on the inside near my knee). I'm not
too concerned about it now because I have yet to set up the
humidifier and I have had these "dry skin patches" before that went
away with vitamine E. I was a little concerned though because at my
last visit to my RD, he asked if I had any rashes. My wife is going
to give him a call today, but has anybody had this as a side effect
of Enbrel?? I've been on it for a little over a month.
thanks,
scott

newsletter

2008-02-27 03:01:16

i just wanted to thank jack again for the awesome job
he does on the newsletter. jack, i really appreciate
the info you provide.
thanks again
susan in ohio

PSORIATIC ARTHRITIS NEWSLETTER NO. 6

2008-02-26 18:00:44

PSORIATIC ARTHRITIS NEWS AND VIEWS
VOL. 1 ISSUE 6 December 8, 2001
PSORIATIC ARTHRITIS MEDICAL NEWS
Before we begin with the latest news, I would like to take this opportunity
to publicly say how glad I am that Michelle Atwood Stack is home again and on
the mend. We are privileged to have Michelle as our founder and once again
she has proven how tough she can be in facing the daily challenges of her
life.
FDA APPROVES NEW COX-2 INHIBITOR -WASHINGTON (Reuters Health) Pharmaceutical
makers Pharmacia Corp. and Pfizer Inc. jointly announced on Monday that
Pharmacia has received approval from the US Food and Drug Administration
(FDA) to market a new COX-2 inhibitor, offering a once-a-day treatment
regimen for osteoarthritis. The companies said that Pharmacia received
approval for Bextra (valdecoxib tablets), a COX-2 inhibitor that would also
be indicated for the treatment of adult rheumatoid arthritis and for
menstrual pain. Pfizer is Pharmacia's co-promotion partner.
The companies said that the approval of Bextra was based upon global clinical
trials, involving more than 5,000 patients. In those clinical trials, the
companies said that the 10 mg tablet of Bextra taken once daily was shown to
be as effective as the commonly prescribed doses of other NSAIDs, including
ibuprofen, diclofenac and naproxen for the treatment of osteoarthritis.
Pharmacia spokesman Craig Buchholtz told Reuters Health that the exact launch
date and price per dose had yet to be determined.
Merrill Lynch securities analyst Steven Tighe said that he expects 2002 sales
of Bextra to generate about $450 million in revenues. Tighe said that these
estimates were in part based upon the fact that the FDA approval was received
ahead of schedule, giving the companies a jump on Merck's second generation
COX-2 inhibitor Arcoxia (etoricoxib).
Merck just filed for the approval of Arcoxia in the last couple of months.
Copyright © 2001 Reuters Ltd.
***************************************
Editors note: This is the second in our series about less common forms of
arthritis. Our last issue covered Anklosing Spondylitis.
INFECTIOUS ARTHRITIS Joint pain, soreness, stiffness and swelling may follow
an infection involving several types of agents, including bacteria, viruses
and even fungi. These infections may affect one part of the body (for
example, through the lungs during pneumonia) and infect the joint after
spreading through the bloodstream. They may enter the joint through a nearby
wound. Sometimes, tissue around the joint can become infected after surgery,
an injection or trauma. Once the infectious agent reaches the joint, it can
cause symptoms of joint inflammation and, at times, fever and chills.
Depending on the type of infection, one or more joints may be affected. For
example, bacteria tend to cause infection of only one joint, often the knee.
Small joints -- the fingers and toes -- are more likely to become infected
after an inoculation or bite. Among intravenous drug users, less commonly
infected joints, such as those in the spine or sternum (breastbone), may be
involved. People who already suffer from rheumatoid arthritis or other joint
disease are at increased risk of infectious arthritis.
Certain infectious agents may cause reactive" arthritis, in which the
infectious agent is no longer present; but weeks, months or even years later,
arthritis develops as a reaction to the prior infection. This is thought to
occur because, in genetically susceptible people, part of the bacteria looks
similar to proteins present in the joint, setting off an autoimmune
inflammatory reaction. In this way, the infection may cause an ongoing
arthritis long after it has come and gone. Infections of the genital and
gastrointestinal tract are the most common triggers of reactive arthritis.
SYMPTOMS
Joint pain and stiffness, typically in the knee, shoulder, ankle, finger,
wrist or hip. Warmth and redness in surrounding tissue.
Chills, fever, weakness.
Skin rash.
It is unusual for joint deformity to result from infectious arthritis if it
is promptly detected and appropriately treated. Some of the more common types
of infectious arthritis include:
LYME DISEASE
Lyme disease is caused by bacteria that live in the deer tick and are
transmitted through a tick bite into a person's bloodstream. Also called Lyme
arthritis, this form of infectious arthritis is named for the Connecticut
town where it was first observed. Lyme disease is only found in parts of the
world where the appropriate ticks are found; in the United States, most cases
are described in coastal New England (Massachusetts, Rhode Island and
Connecticut), New York, New Jersey, Pennsylvania, Wisconsin and Minnesota.
After a person is bitten by a tick, a large, round, red rash (called erythema
migrans) usually develops around the bite; there is often a normal-appearing
area of skin in the center. Flu-like symptoms may develop, including fever,
headaches, chills, body aches, stiffness, nausea, fatigue and sore throat.
The symptoms of Lyme disease often mimic those of other diseases. In
addition, considerable time can pass between the first appearance of the rash
and the next wave of symptoms. Because the bite goes unnoticed and the rash
may be overlooked, Lyme disease is not always suspected initially. When the
infection is not treated, further symptoms develop, most seriously joint
inflammation (most commonly, the knee), neurological symptoms (confusion,
convulsions, muscle weakness), and an abnormally slow heart rate that may
lead to fainting. Antibiotic treatment (either orally or intravenously)
usually cures the illness. A pacemaker may be necessary for the abnormal
heart rhythm.
GONOCCAL OR GONORRHEAL ARTHRITIS
Gonorrhea is a sexually transmitted bacterial infection that produces, among
other symptoms, pain in one or more joints and/or tendons. There may also be
a rash and fever associated with this type of infectious arthritis. About a
third of all those who contact gonorrhea report joint pain, although actual
infection is probably much less frequent. STAPHYLOCCAL ARTHRITIS
The staphylococcal bacteria can be released in the bloodstream and spread to
the knee or other joints, causing intense and sudden pain, swelling and
immobility of the joint. This is a serious condition because joint damage may
develop in a matter of days if the infection is not promptly detected and
treated.
TUBERCULOSIS
Tuberculosis, an infectious disease caused by the tubercle Bacillus, is
characterized by inflammation, abscesses (pus-filled pockets), necrosis
(death of tissue), calcification (accumulation of calcium deposits) and
fibrosis (abnormal formation of fibrous, or scar, tissue). Although
tuberculosis is most commonly associated with the lungs, it can affect other
parts of the body, including the gastrointestinal tract, the nerves, lymph
system and skin, as well as bones and joints. The inflammation in joints
caused by tuberculosis tends to be less dramatic than some other bacterial
infections, so a more chronic arthritis may develop unless antibiotic therapy
is administered.
VIRAL ARTHRITIS
Viruses are minute organisms that depend on the nutrients found inside living
cells to thrive and reproduce. Among the more than 300 known viruses, many
cause important infectious diseases, including colds, upper respiratory
infections, HIV, hepatitis, rubella and mumps among others. Arthritis can
arise in connection with many of these viral infections. In general, the
arthritic symptoms will disappear in a few days, when the underlying disease
runs its course. Many joints may be simultaneously affected; in fact, viral
infections may mimic rheumatoid arthritis except that with most types of
viral arthritis complete resolution is observed within several days or weeks.
Some viruses, including hepatitis B and C and HIV, may cause a more chronic
infection along with joint pain or inflammation.
DIAGNOSIS
If your doctor suspects that your arthritic symptoms are related to a
bacterial infection, he or she will likely draw fluid from the affected joint
with a needle (after providing numbing medication to the area) in order to
have it analyzed in the lab. Blood and urine tests may also be helpful. When
a sexually transmitted disease is the suspected cause, a pelvic examination
(for women) and penile swab (for men) may be recommended to detect the
underlying infection. For most viral disease, no specific tests are helpful;
for the more chronic and serious agents, such as hepatitis B and C and HIV,
accurate antibody tests for diagnosis are available.
TREATMENT
Because many bacterial infections can rapidly and permanently destroy the
cartilage around the joints, a joint infection needs to be treated
immediately. If bacterial infection is involved, antibiotics will be
prescribed. Viral infections do not respond to antibiotics, although
antiviral therapies are available for some (for example, HIV infections may
be treated with a number of antiviral medications, often in combination);
aspirin or ibuprofen may be taken to alleviate the pain and swelling during
the time it takes for the infection to run its course. Fortunately, viral
infections do not cause joint damage as a rule. In cases in which the
underlying condition is chronic, treatment will target pain and swelling
throughout the course of the disease.
Sometimes, hospitalization may be recommended in order to drain the infected
joint and to allow rest of the joint. In some cases, the joint may need to be
opened surgically so that damaged tissue can be removed. It may be difficult
to determine whether surgical intervention during a bacterial joint infection
is necessary, as studies comparing surgery to a more conservative approach
have not been performed. Surgery is rarely necessary for those bacteria
associated with sexually transmitted diseases. If serious damage has already
occurred, surgical reconstruction of the joint may be considered.
While the joint is recovering from the infection, it may be necessary to
immobilize the joint with a splint. After the joint recovers, physical
therapy may be necessary to restore strength and mobility.
********************************
CURRENT RESEARCH IN RHEUMATOID ARTHRITIS FROM NIH
The National Institute of Arthritis and Musculoskeletal and Skin Diseases
A broad look at what the NIH is doing in research for rheumatoid arthritis.
Over the last several decades, research has greatly increased our
understanding of immunology, genetics, and cellular and molecular biology.
This foundation in basic science is now showing results in several areas
important to rheumatoid arthritis. Scientists are thinking about rheumatoid
arthritis in exciting ways that were not possible even 10 years ago. The
National Institutes of Health funds a wide variety of medical research at its
headquarters in Bethesda, Maryland, and at universities and medical centers
across the United States. One of the NIH institutes, the National Institute
of Arthritis and Musculoskeletal and Skin Diseases, is a major supporter of
research and research training in rheumatoid arthritis through grants to
individual scientists, Specialized Centers of Research, and Multipurpose
Arthritis and Musculoskeletal Diseases Centers.
Following are examples of current research directions in rheumatoid arthritis
supported by the Federal Government through the NIAMS and other parts of the
NIH.
Scientists are looking at basic abnormalities in the immune systems of people
with rheumatoid arthritis and in some animal models of the disease to
understand why and how the disease develops. Findings from these studies may
lead to precise, targeted therapies that could stop the inflammatory process
in its earliest stages. They may even lead to a vaccine that could prevent
rheumatoid arthritis.
Researchers are studying genetic factors that predispose some people to
developing rheumatoid arthritis, as well as factors connected with disease
severity. Findings from these studies should increase our understanding of
the disease and will help develop new therapies as well as guide treatment
decisions. In a major effort aimed at identifying genes involved in
rheumatoid arthritis, the NIH and the Arthritis Foundation have joined
together to support the North American Rheumatoid Arthritis Consortium. This
group of 12 research centers around the United States is collecting medical
information and genetic material from 1,000 families in which two or more
siblings have rheumatoid arthritis. It will serve as a national resource for
genetic studies of this disease.
Scientists are also gaining insights into the genetic basis of rheumatoid
arthritis by studying rats with autoimmune inflammatory arthritis that
resembles human disease. NIAMS researchers have identified several genetic
regions that affect arthritis susceptibility and severity in these animal
models of the disease, and found some striking similarities between rats and
humans. Identifying disease genes in rats should provide important new
information that may yield clues to the causes of rheumatoid arthritis in
humans.
Scientists are studying the complex relationships among the hormonal,
nervous, and immune systems in rheumatoid arthritis. For example, they are
exploring whether and how the normal changes in the levels of steroid
hormones (such as estrogen and testosterone) during a person's lifetime may
be related to the development, improvement, or flares of the disease.
Scientists are also looking at how these systems interact with environmental
and genetic factors. Results from these studies may suggest new treatment
strategies.
Researchers are exploring why so many more women than men develop rheumatoid
arthritis. In hopes of finding clues, they are studying female and male
hormones and other elements that differ between women and men, such as
possible differences in their immune responses.
To find clues to new treatments, researchers are examining why rheumatoid
arthritis often improves during pregnancy. Results of one study suggest that
the explanation may be related to differences in certain special proteins
between a mother and her unborn child. These proteins help the immune system
distinguish between the body's own cells and foreign cells. Such differences,
the scientists speculate, may change the activity of the mother's immune
system during pregnancy.
A growing body of evidence indicates that infectious agents, such as viruses
and bacteria, may trigger rheumatoid arthritis in people who have an
inherited predisposition to the disease. Investigators are trying to discover
which infectious agents may be responsible. More broadly, they are also
working to understand the basic mechanisms by which these agents might
trigger the development of rheumatoid arthritis. Identifying the agents and
understanding how they work could lead to new therapies.
Scientists are searching for new drugs or combinations of drugs that can
reduce inflammation, can slow or stop the progression of rheumatoid
arthritis, and also have few side effects. Studies in humans have shown that
a number of compounds have such potential. For example, some studies are
breaking new ground in the area of "biopharmaceuticals," or "biologics."
These new drugs are based on compounds occurring naturally in the body, and
are designed to target specific aspects of the inflammatory process.
Investigators have also shown that treatment of rheumatoid arthritis with
minocycline, a drug in the tetracycline family, has a modest benefit. The
effects of a related tetracycline called doxycycline are under investigation.
Other studies have shown that the omega-3 fatty acids in certain fish or
plant seed oils also may reduce rheumatoid arthritis inflammation. However,
many people are not able to tolerate the large amounts of oil necessary for
any benefit.
Investigators are examining many issues related to quality of life for
rheumatoid arthritis patients and quality, cost, and effectiveness of health
care services for these patients. Scientists have found that even a small
improvement in a patient's sense of physical and mental well-being can have
an impact on his or her quality of life and use of health care services.
Results from studies like these will help health care providers design
integrated treatment strategies that cover all of a patient's needs-emotional
as well as physical.
Source: The National Institute of Arthritis and Musculoskeletal and Skin
Diseases of the National Institutes of Health
******************************
AMERICANS STRESSED BY ATTACKS By JEFF DONN - The Associated Press BOSTON (AP)
- Nearly half of American adults had pronounced symptoms of stress from the
Sept. 11 attacks in a nationwide survey documenting the catastrophe's broad
effect on public health. ``It's important for people to understand if they
had these types of reactions, they're not alone, and they're not unusual,''
said Dr. Mark Schuster, a pediatrician who led the study at the Rand think
tank in Santa Monica, Calif. ``It helps people to get over the symptoms if
they realize these are normal reactions.''
The findings, published in Thursday's New England Journal of Medicine,
confirm what other surveys have found: that the psychological impact of the
terrorist attacks reverberated near and far.
The researchers conducted telephone interviews with a representative sample
of 560 adults on the weekend after the Sept. 11 attacks.
The adults were asked if they felt upset when reminded of the attacks, were
disturbed by repeated memories or dreams, had trouble concentrating or
sleeping, or suffered from irritability or angry outbursts.
Ninety percent reported one symptom at least ``a little bit.'' Forty-four
percent had at least one symptom ``quite a bit'' or ``extremely.'' The most
common substantial symptom, shared by 30 percent, was feeling upset by
reminders.
Women, minorities, people with prior mental health problems, heavy television
watchers and those closer to the World Trade Center were most likely to
report stress.
Asked how they coped, 98 percent of those surveyed said they talked to
others, 90 percent turned to religion, 60 percent joined in group activities,
and 36 percent made donations or did volunteer work. Only 18 percent bought
extra food, gasoline or other supplies. Thirty-nine percent occasionally
avoided television or other reminders of the attacks.
People clearly watched lots of television to learn details of the attacks -
an average of eight hours on Sept. 11, according to the study. The study was
not designed to say if television ultimately eased or aggravated stress.
Schuster said he suspects it can work either way.
Such stress reactions typically diminish over time, researchers say. The
survey did not go beyond Sept. 16, but other surveys have indicated an easing
of stress since then.
Those surveyed by Rand were also asked about children in their homes. They
said 35 percent showed one or more stress symptoms. Forty-seven percent were
said to be worried about their own safety or that of someone they love. A
third of the adults limited television for their children, and 99 percent
talked to them about the attacks.
Dr. Carol S. North, a psychiatrist at Washington University in St. Louis who
studied survivors of the 1995 bombing in Oklahoma City, said the Sept. 11
attacks appeared to shake society even more broadly. ``What's really
interesting is its ability to reach out and touch someone quite a distance
away,'' she said.
******************************
VIOXX, PRILOSEC -MOST ADVERTISED DRUGS WASHINGTON (Reuters) - Drug companies
spent nearly $2.5 billion last year in advertising brand-name drugs directly
to the public, the Kaiser Family Foundation reported Thursday. The nonprofit
foundation, which conducts research on health and family issues, said
consumers may remember the names of the drugs and the diseases they treat,
but may get mixed up about potential side-effects. It said the most heavily
advertised drugs are also often the most heavily prescribed.
The foundation's top 10 most-advertised prescription drugs were:
1. Vioxx, Merck and Co.'s anti-inflammatory ($160.8 million)
2. Prilosec, AstraZeneca's anti-ulcer drug ($107.9 million)
3. Claritin, Schering-Plough's antihistamine ($100.3 million)
4. Paxil, GlaxoSmithKline's antidepressant ($92.1 million)
5. Zocor, Merck's anti-cholesterol drug ($91.2 million)
6. Viagra, Pfizer's erectile dysfunction drug ($89.8 million)
7. Celebrex, Pharmacia's competitor to Vioxx ($78.8 million)
8. Flonase, GlaxoSmithKline's asthma drug ($78.1 million)
9. Allegra, an antihistamine made by Aventis ($67 million)
10. Meridia, made by Abbott (ABT.N) to treat obesity ($65 million)
The top 10 drugs by sales in 2000 were:
1. Prilosec ($4.6 billion)
2. Lipitor, Pfizer's cholesterol drug ($4.15 billlion)
3. Prevacid, Abbott's ulcer drug, ($3.15 billion)
4. Zocor ($2.8 billion)
5. Prozac, Eli Lilly's antidepressant ($2.66 billion)
6. Celebrex ($2.15 billion)
7. Epogen, Amgen's anemia drug ($2.06 billion)
8. Zoloft, an antidepressant by Pfizer ($1.98 billion)
9. Zyprexa, Eli Lilly's anti-psychotic ($1.9 billion)
10. Procrit, An anemia drug licensed to Johnson & Johnson ($1.8 billion)
Copyright 2001 Reuters Limited.
***********************************
COMMON LATIN Rx TERMS
LATIN ABBREVIATION MEANING
ante cibum ac before meals
bis in die bid twice a day
gutta gt drop
hora somni hs at bedtime
oculus dexter od right eye
oculus sinister os left eye
per os po by mouth
post cibum pc after meals
pro re nata prn as needed
quaque 3 hora q 3 h every 3 hours
quaque die qd every day
quater in die qid 4 times a day
ter in die tid 3 times a day
*******************************
Please be reminded that we are providing this newsletter for educational
purposes only and it is not ever intended as medical advice. Articles
relating to general health issues can be equally important too. Occasionally
there may be topics of sufficient value that warrant a good discussion with
your medical caregivers.
For new members who have an interest in past newsletters, please feel free to
e-mail me and I can provide you with exact message numbers that can be found

New Member

2008-02-26 12:25:44

Hello everyone,
My name is Ann and I am 41yrs old. I live in Indiana with my husband
David and two children one 7yrs old and my youngest is 7months old.
I have had Psoriasis since I was 19yrs old, but didn't have it
diagnosed until I was 35. My Psoriasis has progressed with each of
my pregnancies. In the beginning I just had a little on my scalp.
When I became pregnant the first time I began having lesions on my
elbows and chest. With my second pregnancy the lesions progressed to
my face, back, right knee, stomach, and hands. Over the years I
noticed that my joints were getting sore. They would flare up then I
would feel better. (I just thought I was getting old) After my son
was born (7mos ago) My right shoulder, left knee, and left thumb and
wrist was extremely stiff. It was hard to pick up my baby in the
middle of the night or in the mornings. I told my Dermatologist
about the pain and he referred me to a Rhum. (He was the one that
diagnososed me with PA. I am still getting use to the idea of having
PA. I have my good days and my bad days. So far I have been
controlling the discomfort with NSAIDs. But my stomach is starting
to give me trouble so I am being switched to another medication. (I
don't know what yet)
Anyway, this is me, I am so glad to have found this website, it is
comforting to know that I am not the only one and to be able to read
how other people are dealing with things.
Sincerely,
Ann L

Neurotomy.htm

2008-02-26 11:29:32

NeurotomyI have been telling those with PA in the spine causing severe pain
about Radio Frequency Neurotomy. It greatly helps me, and I have found this
great web page which better explains it better than me, so I would like to share
it with you. As I have said previously, I have had it performed three times and
get 60% pain relief for about six to nine months.
Regards, Gordon
FACET NEUROTOMY
(Medial Branch Rhizotomy)
Discogram
SNRB
Epidural
Facet
Sympathetic
Costovertebral
Stellate Ganglion
Neurotomy
WHAT IS IT?
Facet neurotomy is a procedure which results in interruption of the
nerve supply to a facet joint. This interruption known as denervation, is
accomplished by a radio-frequency probe that heats the 2 small nerve branches to
each facet joint. These nerves are called the medial branches.
HOW IS IT DONE?
With the patient in a prone position and under local anesthesia and
fluoroscopic guidance, a radio-frequency needle is advanced to the base of the
transverse processes. The needle is placed along the course of the medial
branch. The needle is heated to 80° C for 90 seconds. At least 2 branches for
each joint are treated in this same manner.
HOW LONG DOES IT TAKE?
The neurotomy takes 10 to 45 minutes, depending on the number of
levels to be done. The patient is then recovered in the observation area for 30
minutes to 1 hour.
POTENTIAL RISK?
Increased localized back pain and/or leg pain can be expected from
several days to several weeks and rarely several months. Destabilization of the
facet joint is a risk and post injection training to strengthen the extensor
muscles can prevent this possibility.
EXPECTED OUTCOME?
Following the neurotomy, there is a 60% chance of pain relief. This
typically last for 3 months to 1 1/2 years. The nerve eventually grows back and
the procedure can be repeated. While the patient is experiencing pain relief,
vigorous physical therapy is necessary to try and strengthen the involved facet
joint(s).
Glossary
Neurotomy: Division, transection or dissection of a nerve.

oxy and sweating

2008-02-26 07:16:39

Happy holidays everyone!!
I know this is kind of an unpleasant topic but...I recently was
put on ocxycontin, 40 mg, 3x a day. I have these spells of really
profuse sweating. Now that I feel good enough to get up and go
places, I am too ashamed of my face dripping with perspiration
constantly. This is probably normal but I just wondered of there are
any supplements or any helpful hints out there.
Re: pa and the spine. I have AS along with PA and am still a
little confused about how I was diagnosed with this (AS) and not told
it is simply another part of PA. I have no fused joints yet so how
can he be sure it is AS and not pa of the spine? Hmmm I guess the
docs have their ways.
Glad you are back michelle! Have a great holiday everyone!!
Beth

Other things to consider with the AP regimen and PA

2008-02-26 03:32:30

Hi;
The following is a reply I received on another e-mail list about PA in
connection with the antibiotic protocol. I thought the listers in this
group might be interested, too. (I'm sure Mike [newjersey] will agree!)
--Louise
bg thoughts: From studying Dr. William Crook's work (The Yeast
Connection, etc.) I pretty much believe people who have psoriasis
also have an overgrowth problem with yeast -- whether it seems
obvious or not. In his "The Yeast Connection and the Woman (also for
children and men)" he writes much about the immune disorders,
conditions, including psoriasis.
The reason those on the M-W-F schedule MAY do better is because it
gives more time to "reforest" the gastrointestinal system -- which
must be healthy with good flora (which AP takes a toll on, and we
should take probiotics)and this schedule gives us more opportunities
to take them.

Pain Meds & nail psoriasis

2008-02-25 18:49:39

Did any of you have problems that they just stopped working. So far
Ultram stopped, vicodin doesn't work now they tylenol #3 does not
work. What else does everbody take? I am at my witts end.
Ok and the nails my nails only on a couple of fingers the bed is
getting funky looking. sunk in and pits in it. The other part of the
nail seems to be getting thicker. Is this nail psoriasis? Any
remedies? Right now I am covering it up with nail polish.
Thanks Denise

pa in the spine

2008-02-25 12:09:09

Thanks to those responding to my query whether others had it mainly in the
spine. I too know only too well over many years how excruciating the pain can
be. I have been frequently taking narcotic painkillers, however, my
rheumatologist started me on a relatively simple day hospital procedure which
gives relief without heavy duty painkillers. You may not have seen my earlier
mails on this. It is called Radio Frequency Neurotomy and is performed by a
Pain Management Specialist under light sedation and local anasthetic. It
entails burning certain nerves in the back with high frequency radio waves to
desensitize them, using x-ray guided probes, in order to try and form a pain
block. It is not permanent because the nerves do regenerate, and length of pain
relief varies from individual to individual, ranging from six to fifteen months.
For me, it is not perfect, but does reduce pain to more manageable levels and
less strong painkillers are sufficient, often only OTC painkillers. It holds
for about six to nine months, when the build up of pain cycle begins again.
When I cry "uncle", I am wheeled in to have it done again. I had my third RFN
procedure in March this year and it is still holding up fairly well, only I
developed this wretched chostocondritis which forced me back to narcotic
painkillers, but it too has settled after a course of Prednisone. The
availability of RFN is dependent on having a theatre set up with the equipment.
It requires an anaethetist, the specialist doing the procedure, a radiologist
handling the fluroscope, and a medical technician operating the high frequency
radio waves machine. Therefore, it is not cheap, but here in Australia most of
the cost is met by Medicare (government taxpayer funded medical scheme for all
Australians) with shortfall being picked up by my private health insurance. I
beleive it should be available in the US through your medical insurers.
Regards, Gordon

Slightly OT but we have all been here and do this for each other

2008-02-25 01:49:18

Here's food for thought: A great note for all to read. It will take just 37
seconds to read this and change your thinking.
Two men, both seriously ill, occupied the same hospital room.
One man was allowed to sit up in his bed for an hour each afternoon to
help drain the fluid from his lungs. His bed was next to the room's only
window.
The other man had to spend all his time flat on his back. The men talked
for hours on end.
They spoke of their wives and families, their homes, their jobs, their
involvement in the military service,
where they had been on vacation. Every afternoon when the man in the
bed by the window could sit
up, he would pass the time by describing to his roommate all the things
he could see outside the window.
The man in the other bed began to live for those one-hour periods where
his world would be broadened
and enlivened by all the activity and color of the world outside. The
window overlooked a park with a lovely
lake. Ducks and swans played on the water while children sailed their
model boats. Young lovers walked
arm in arm amidst flowers of every color and fine view of the city
skyline could be seen in the distance.
As the man by the window described all this in exquisite detail, the man
on the other side of the room would
close his eyes and imagine the picturesque scene. One warm afternoon the
man by the window described a parade
passing by. Although the other man couldn't hear the band - he could see
it. In his mind's eye as the gentleman by
the window portrayed it with descriptive words. Days and weeks passed.
One morning, the day nurse arrived to bring water for their baths only to
find the lifeless body of the man by the
window, who had died peacefully in his sleep. She was saddened and called
the hospital attendants to take the
body away. As soon as it seemed appropriate, the other man asked if he
could be moved next to the window.
The nurse was happy to make the switch, and after making sure he was
comfortable, she left him alone.
Slowly, painfully, he propped himself up on one elbow to take his first look
at the real world outside.
He strained to slowly turn to look out the window beside the bed. It faced a
blank wall. The man asked the
nurse what could have compelled his deceased roommate who had described such
wonderful things outside this
window. The nurse responded that the man was blind and could not even see
the wall. She said, "Perhaps he
just wanted to encourage you."
Epilogue: There is tremendous happiness in making others happy, despite our
own situations. Shared grief is half
the sorrow, but happiness when shared, is doubled. If you want to feel rich,
just count all the things you have
that money can't buy.
"Today is a gift, that's why it is called the present."

RE:Sulfasalazine

2008-02-24 18:56:59

Hello Dan
Thanks for the response!
I take 2 tablets of Sulfasalazine 500mg ea in the morning and 2 in the
evening.
The Vioxx are 25mg and I take one of those in the morning.
Regards, Ken N

New member/MTX, Vioxx

2008-02-24 18:56:23

Hello,
I've been on vioxx for a couple of years, have had no side effects,
and have found it very effective at controlling overall stiffness and
achyness. I've been on MTX for about 8mos. and have also had no side
effects. Some people have said it makes them tired or nauseated the
day they take it, but I actually have a ton of energy right now, and
have had no nausea. It's been pretty effective, although I'm still
having trouble with my toes.
I don't know why I haven't had side-effectsfrom MTX, except that I'm
pretty health conscious, and keep my stress levels down as much as
possible.
Anyway, good luck!
--
Kristin Boice

Peroxide didn't help me either

2008-02-24 04:45:40

I tried the hydrogen peroxide on the P on my hand for a week. If anything,
it made it worse. And what I thought was chapped knuckles is apparently P
so I actually have 4 areas, not just the one. It sure sounded like a good
idea...

Sorry haven't been e-mailing...

2008-02-24 04:30:05

Hey guys...I know it has been a long time since I have e-mailed...Just been very
busy...Had the Thanksgiving Holidays, then I did start my new job, so it is hard
every other week to get online...But thought I would say hello and let you know
I am still here...Welcome to all the newbies...:) Hope everyone is doing
good...Well gotta work tonight so will probably check back on the list on
Friday...Take care guys...:) Love and hugs, Pam

PA affectong the spine

2008-02-23 17:39:42

I have been following the joint locations of PA of others in the group, but have
seen little on those having it mainly in the spine, of an ankylozing form. That
is my major problem and after 23 years the spine is so degenerated, I have been
left disabled. In the cervical spine, there is some lipping of all discs, a
scoliosis to the left apex, and a prominent osteophytic barrier at C4-C5 level,
which has also narrowed the spinal canal. In the thoracic spine, there is some
lipping of all the discs and an upper thoracic kyphosis. In the lumbar spine,
there is some lipping of all the discs, and many osteophytes. The S joints are
also affected and I get inflamation of the facet joints as well. My
rheumatologist has said that if it had been a hip or a knee, it would have been
replaced long ago, but they cannot do spines, yet??? I would like to hear from
anyone with this nasty form of PA and whether they have suffered irreversible
damage as I have.
Regards, Gordon

MTX and Arava with Remicade - What doses?

2008-02-23 13:05:11

Looks like I might get a place on a Remicade drug trial (100 patients
in 8 centres across Europe and America, double blind )for PA
sufferers only.
I am currently taking 20mg Arava daily and 10mg MTX weekly and had
previously taken 30mg MTX (with dire side effects).
Does anyone take both Arava and MTX with Remicade and if so, what
doses? I can't say that I like the idea of taking 3 DMARDs at the
same time, though I accept that I have to take at least one other.
Does anyone take Remicade with just Arava? How much?
Mike in the UK

New Member

2008-02-23 05:17:10

Hello my name is Ken I live in Calgary, Canada. I've had Psoriasis since I
was 11 years old. I'm now 42 yrs. old. The Psoriasis is only on my hands,
feet knee's & elbows.
I was diagnosed with PA in Sept.2001 of this year after extreme pain in my
hands starting in Feb.2001 It started off with swelling on my Hands and
stiffness in the mornings. My family doctor put me on celibrex. Which did
not do a dame thing.
He sent me to a carpal tunnel specialist. He told me I was at the wrong
doctor. That I need to see a specialist in rheumatic diseases. After going
back to my family doctor for a recommendation I told him the celibrex was
not working. He then put me on Vioxx which seems to control the swelling. He
then sent me to the arthritis Clinic in Calgary, were they did some test on
my nerves in my hands and feet. They told me I had some nerve damage. They
then told me I should go see a Arthritic specialist. So back to my family
doctor I go. (for the referral).
After waiting 6 months to see this rheumalogist he told me I have two
options of medication the first being Methotrexate which I was not
comfortable with finding out it is a drug originally designed to treat
leukemia. The other option was Alti-Sulfasalazine. So I've been taking that
in Sept.2001 I don't know that it has been helping. I still wake up with
sore hand (until I have a hot shower). I find it hard to walk in the
mornings & my right knee is becoming a problem now. It feels like I have
damaged the ligaments in my knee. But I cant remember doing any thing to
cause this. Does MTX really work? And what are the side affects? And how
long can you take Vioxx with out side affects.
Best Regards, Ken N
Calgary, AB

sharpening injection needles - Ron

2008-02-23 04:49:13

Ron, I didn't mean to sound critical of your suggestion. I just
wanted to make sure of what I was reading. I'm under the assumption
that sharpening or honing a needle edge would produce some amount
of "grit" either from the metal needle or whatever you used to
sharpen it with. That loose material would seem to me to be a very
possible cause for infection in an already weak immune system.
Sterilization would likely only remove the germs. Please correct me
if I'm wrong.

Question about AP

2008-02-23 00:36:31

Hi all.
My Gp told me today that they have used Ap treatment in Norway a few
times (for Ra), but he didnt think it would help pasient with Pa.
The reason for that was something about how the way the illness
starts, and that psoriasis worked different than Ra,since it
normally are the joints where you have psoriasis at the skin the
bones get destroyed. Does that mean that my bones dosen't get
destroyd as long as my psoriasis are about non excistent??? Even if I
got inflammations in almost all of my joints,with little swelling??
Also, i'd like to know if those of you on the AP treatment know
how/when your artheritis started?? My Gp mentioned something about
the antibiotics would help better for those who had an infection
starting there illness. Any coments???
I'm only taking celebra 400mg a day right now. I'm supposed to start
dmards end of january, and would like to have made up my mind of
whats the best treatment in my opinion, before seeing my rhemy again.
Thanks alot to all of you out there telling about your life and
experienses. Hege from Cold-cold Norway!

Newly diagnosed

2008-02-22 19:32:33

Hi There. My name is Debbie and I am a 40 year old mother of three
with one grandchild. I have only known about this disease for about
1 month now. I work for a chiropractor as a therapist and massage
therapist. I started feeling like I had the flu about 4 months ago
and kept getting worse. He suggested we do some blood work. He did
the work up and recommended I go to a rhuematologist. Thats when I
was diagnosed with the PA. Until now, I had never heard of such a
thing! Doing research online is how I found this group. I hope
ya'll can help me cope with this! The pain is really severe and
hasn't let up since the beginning. I keep reading that there are
times of remission or something similar. I haven't had one of those
yet! Currently my doctor has me on Tolmectin? He originally tried
Indocin but it made me too sick. I was in bed for three days and
lost about 5 pounds from throwing up and not eating. Not the best
way to lose the weight! =) Anyway, I was always a very active
person. I ran, played basketball, rode horses, hunted, you name it!
We are a very outdoor oriented family. It is very depressing not to
be able to do any of these things anymore. Also as a massage
therapist my hands are very important. I have lost money and clients
due to this stuff! I really appreciate any help and advice you can
give me and look forward to hearing from you all!
Thanks,
Debbie

Parafin wax treatments

2008-02-22 10:01:30

Where do you keep the Parafin wax machine to be able to do both hands and
feet? If I had it on a counter, I couldn't get my feet in it and if it were
on the floor it would not only be a safety hazard but I could never get down
there and get my hands or elbows in it and get back up. I have to laugh
just thinking about it.
Darlene

Pustular Psoriasis

2008-02-22 07:28:20

To whoever has the pustular psoriasis on their feet - me, too. But here's
what works for me. DuoDerm, very expensive ulcer dressing, in the ultra
thin variety. You may have to special order it at your pharmacy. The last
time I bought it, it was $4/4' square. Cut it to fit the areas that are
open, tape the edges with paper tape to keep it from melding with your
socks. It's the only way I can walk when I have an outbreak. You can cut
it to fit any shape or part of your body. Then ask your doctor, preferably
your derm, about Grenz ray treatments. It's the only thing that has ever
worked for me. It discolors your skin for a while but it always stops the P
on my feet. It can be used even on the broken skin but works fastest when
it's just blistered. I suspect it would work on your palms as well. Good
luck. My heart goes out to you.

Prednisone/Psoriasis

2008-02-21 22:02:19

"Never use prednisone for P. It makes it WORSE!! Tracy"
Thanks, Tracy. No wonder it's out of control! I wondered what was going on.
Sarah in Oklahoma
r_bilder@... more from the Web. FREE MSN Explorer download :
http://explorer.msn.com

Prednisone/hot wax/OT

2008-02-21 20:50:27

Just a few thoughts:
Tracy, My rheumy is reluctant to prescribe Prednisone because it makes the P
worse. That is why he only gave me a weeks course of Prednisone for the
costochondritis, which is still providing relief.
Regarding hot wax treatment, twenty years ago, on the instructions of my then
rheumy, I regularly attended the physio department of the local hospital for hot
wax treatment for the hands. They had a large vat of bubbling hot wax into
which I would plunge my hands and then they were wrapped in towels for about
forty minutes. It did give me relief but this treatment does not seem to be in
favour now. Please give it a try.
A bit of OT now, but since I decided to come online with a PC, I have found the
support, advice and information from the group to be a great help. Moreover,
through expanding contacts, I am back in contact with a number of my old Army
friends. I was a professional soldier in the Australian Army for twenty years
and these old comrades are those with whom I served overseas in action. We saw
action in anti-terrorist operations in the late 1950s and mid 1960s in the
jungles of Malaya and Borneo as part of combined British Commonwealth forces.
My heart and soul and thoughts are with the troops (US, British, and shortly,
Australian) forces on similar operations in Afghanistan. May I wish them God
speed and a safe return.
Regards, Gordon

Prednisone

2008-02-21 14:09:22

Replying to question: If anyone has any info on Medrol or H.
Pylori I would greatly appreciate it.

Parafin wax treatments

2008-02-21 02:11:39

Has anyone tried parafin wax treatments? They're being advertised
heavily for Christmas in our area. The manufacturer claims they are
great for aching joints. The base of my husband's toes (where the
toe connects to the foot)often aches from his PA and I'm wondering if
the home parafin treatments would help. Any thoughts on this would
be appreciated.
Krista

Not sure if this is where I should be, advice much appreciated

2008-02-20 20:51:04

I've had pustular psoriasis for a little over a year now. It started on my palms
and over the past months has spread to my feet. One of my pinkie nails and one
of the nails on my big toe starting to come off a little. Some days it's very
painful to walk due to the splitting and bleeding. Twice throughout the workday
by big toe has split open and my stockings had gone inside the split. When I got
home I had to open it up to get my stockings out. My derm has me on 7.5 MXT
(after trying everything else). I had to stop taking it a month ago because my
Dr. had a heart attack and was off work for a while and I had no refills left.
The past several weeks my back has started to hurt often, sometimes 1 day a
week, sometimes 5 or 6 days a week. On occasion my hip is also involved. It's
painful, but it's like a constant ache. I must admit that I'm concerned about
PA. Is there a way to tell for sure if I have it or not? Is there a test to
confirm or is it just based on symtoms? With the limited info you have about me,
does it sound like I may have it? I have an appt with my Dr on Tues (yeah, I'm
so relieved that he's ok!). Are there any questions that I should ask him? Any
help you could provide would be greatly appreciated. Thank you and best wished
to each and every one of you.
Liz in NY

PA Support Page

2008-02-20 16:45:45

It looks like William Paterson University have re-arranged their web
site. The old URL for the very useful PA Support Pages no longer
works. Try
http://www.wpunj.edu/pa/default.htm
instead
Mike in the UK (the other one!)

pain relief at last

2008-02-20 15:08:25

I have been so on about chest pain (costochondritis) that I wanted to share with
you, that following the start of a course of Prednisone, in addition to my usual
medications, I have just had a day virtually free of pain. What a wonderful
feeling. Fingers and toes crossed that when I come off the Prednisone in five
days time, I am back on top of it. For information, I am a member of the
Queensland Arthritis Foundation, an affiliate of the National Arthritis
Foundation of Australia. We are a small organisation, given the size of
population of Australia but it offers tremendous support on a personal basis.
If overseas PA members are interested, visit our new website at:
www.arthritisfoundation.com.au. However, I do not agee with the information
there that PA is usually mild, as we all know!!
Regards, Gordon

New Web site from Roche for psoriasis suffers

2008-02-20 06:20:42

Hey Everybody!
I got a post card in the mail today from Roche Laboratories about a web site
they have for psoriasis suffers. Of course it's there partly to peddle one of
their meds (Soriatane) but there are other aspects of the web site that make it
part public service. For instance, you can e-mail "their doctor" Susan Taylor.
They even have her bio posted.
The address is:
www.Psoria-Sense.com
Check it out!
Charlene

Re:Michelle and her extensive sinus surgery

2008-02-19 20:15:13

Hi guys,
I am still waiting for the surgery to occur. It is this Friday the first of
the month. I had to wait for the iron to build up because my RBC, iron and
ferritin were too low. On the other hand, the infections are worsening, as
ois evidenced by the further bglurring in the right eye, etc, and the nausea
and vomiting after llunch and dinner every day,
I have gone from scared to death of the surgtery to can't wait for the
surgery--all in one week! I will be at Columbia Presbyterian Medical Center,
W. 168th St. and Ft. Washington Blvd., NYC. from December 1 for two nights or
so, and then home at
7 Beach Drive, Snug Harbor, Danbury, CT 06811 afterwards. Surgery is on the
first at 9:30 am and prayers are much appreciatred!
All my best,
Michelle Stack

Re:Hydrogen Peroxide and more Candida stuff

2008-02-19 17:15:45

Tracy, I havent tried it there...... It shouldnt hurt though..... It might
bleach the hair though ... I'm not sure.. I used cormax for the scalp when
I had psoriasis there...
I feel so darn great lately......I'm gonna post more in a short while....

Psoriasis Group

2008-02-19 04:23:41

I'm pretty sure that for most of us here, Psoriatic Arthritis is
probably the worse problem we have by far (except maybe for those
with other related diseases and complications), and the Psoriasis
portion of our disease is relatively minor by comparison, but I just

PA site for children

2008-02-19 01:36:10

I just recently discovered an old friend who's daughter is 11 years
old and is taking MTX already. I'm not sure if it's RA or PA but I
mentioned the childrens list that was talked about here a few months
ago. Is it still in existence?
- Jim

Re New here! Hello to all

2008-02-18 20:34:34

<<
Hi Denise, welcome to the group. I know you will find a lot of support and
help from this group.
What part of Wisconsin do you live in and who do you see for your PA?
I live in East Troy- southeast of Milwaukee in Walworth Co. My PA presented
it self (officially diagnosed) 3 years ago. I have had psoriasis (mild to
moderate) for several years. It knocked me out of commission for the first
few months, but then I got back to work (not on my feet anymore though) and
have been working 3 days a week for the past two and a half years.
I started out on nsaids, then MTX, then off it but had another bad flare and
finally on Enbrel for the past 6 months and doing a LOT better. Fortunatley
my kids are mostly grown (the youngest is 21) so I don't have all of the
demands that I used to have on me. I do go at a slower pace than I used to ,
but I am really grateful to be doing as well as I am. Since being on the
enbrel, I have been able to decrease my nsaids a lot.
This is such an unpredictable disease- The one thing that helps me the most
is trying to keep a positive, hopeful attitude--- It is very scary getting
back to work, but you may find alternatives, like part time, telecommunting
etc to make it possible.
Good luck and welcome!
Nancy from Wisconsin

New here! Hello to all

2008-02-18 18:18:46

I was Dx with psoriatic arthritis 2 weeks ago. But I have had
problems for 3 years. My hands, wrists, shoulders, hips, knees, ankles
and feet are involved. I just started on Meth, I was on Plaquenil but
that did nothing for me. The psoriasis is calm now but does show up
from time to time.
The real me is a computer programmer, wife, mother of 2 and I live on
a dairy farm in Wisconsin. I am 41. I have been off of work for 6
weeks and will try to go back part time. I am scared to go back -
but I need to try. I worry that I will not be able to work. I get so
tired and I hurt all day. What do you all do about this?
Nuttydenise
[Moderators note: Denise, how about checking with your employer about the
possibility of telecommuting part time? Employers are usually required by law to
make reasonable accomodations for those who are disabled. I'm also a computer
programmer and I work part time, and telecommute part time, Ron :-)]

PA without P

2008-02-18 10:33:26

My understanding is this:
PA without P is usually harder to diagnose. RA is very similar to PA
especially in its milder form (doesn't feel mild when you get it bad though).
Therefore sero-negative RA could produce similar symptoms to symmetrical poly
arthritic PA. Usually the diagnosis is by way of long term clinical
observation of the progression of the disease. If P is evident usually a
diagnosis of PA is made if rheumatoid Factor test proves negative. If there
is no evidence of P and the subject is sero-negative to Rheumatoid Factor then
sausage finger (dactylitis) or pitting, ridging or separation of the nails (P
of the nails) is a good indicator of PA. Also I believe spinal involvement is
more common in PA than RA.
Either way from what I can gather RA, PA whatever they are, all are, in their
worst expressions, some form of polyarthropathy or spondyloarthropathy and are
treated the same way ie. short term use of NSAIDS followed (quite early on if
no improvement) with DMARDS such as MTX (the last couple of decades wonder
drug), gold, anti malarials, sulphasalazine and recently ARAVA. Then a
progression to the non-human biological agents like ENBREL, REMICADE and the
new human one Adalimumab (still in test phase I believe). The next step will
probably be immune system destruction and rebuilding (similar to leukemia
treatment) whereby they destroy the B- cells completely and then allow the
body to replicate new ones with out the self-cell destroying tendency of the
old B-cells ie. a complete cure for PA.
Just my 2 cents worth on the subject.
Cheers,
Steve

New members - PA advice

2008-02-18 07:16:35

Hi,
My experience with vioxx and methotrexate has been moderate to good
so far. Vioxx has been extremely helpful to me in controlling the
pain - I've been on it for about a year now, and it is still very
effective, and I've had no side effects. I've been on MTX for about
8 mos., and I believe it's working o.k. No side-effects, and
moderately effective in controlling joint swelling. I'm definitely
better now than I was a year ago.
I also noticed that my activity level is extremely important in terms
of pain control. I've always been athletic, and tend to push myself
physically. But I've learned this year to just take it easier when
working out - My goal is no longer to have a sculpted body, or cycle
100 miles - but pain relief. I was depressed about this at first.
But I've finally accepted the fact that I have a disease which causes
chronic pain if I don't pay attention to it (and sometimes, even when
I DO!), and I've learned to respect it, and to be gentle with myself.
That change in attitude has been the best thing I've done for my
arthritis. There is a good resource for chronic pain sufferers at
The American Chronic Pain Association:
http://www.theacpa.org/aboutpain.htm
Earlier this year, I had severe lower back pain, and suspected it
might be due to my weight training regime, in which I had just
increased my weights. After decreasing the weights, and doing more
repetitions at with lighter weights, my back problems disappeared.
So I learned not to automatically assume every ache and pain is PA
related, although PA does limit the intensity of my activities.
Anyway - I hope I didn't go too off-topic! Best of luck...
--
Kristin Boice
Health Education Program
University of California, Davis
Phone: (530) 752-6336
E-mail: keboice@...
http://healthcenter.ucdavis.edu

PSORIATIC ARTHRITIS NEWSLETTER NO. 5

2008-02-18 00:43:58

PSORIATIC ARTHRITIS NEWS AND VIEWS
VOL. 1 ISSUE 5 November 19, 2001
PSORIATIC ARTHRITIS MEDICAL NEWS
Hello to all our worldwide membership. I see that we are now 845 members
strong.
For any new member wishing to browse past newsletters, go to our web site

pregnancy and methotrexate

2008-02-17 22:03:15

Just wondering if anyone can help me or give me some information. My
husband has PA. He has been on Methotrexate for over 12 months. We
are hoping to have a child soon. We have had some advise from our DR
about how to achieve this, but I was wondering if anyone else out
there has been in a similiar situation?
Meg

New treatment?

2008-02-17 14:48:37

Some may find this article interesting
ACR: Adalimumab (D2E7) in Patients with Active RA on Methotrexate (MTX)
SAN FRANCISCO, CA -- November 13, 2001 -- Adalimumab, a new fully human
anti-tumor necrosis factor antibody, demonstrated superior efficacy to
methotrexate in a study of 271 patients with active rheumatoid arthritis who
had shown an inadequate response to methotrexate.
The data, presented yesterday (Nov. 12) at the 65th Annual Meeting of the
American College of Rheumatology (ACR), show that 65.7 percent of patients
treated with adalimumab demonstrated significant improvement in signs and
symptoms of rheumatoid arthritis (RA), while 53.7 percent of patients had an
extremely good response as defined by standard RA evaluation criteria.
The mean age of patients was 55.1 years, 76.8 percent of the study cohort was
female, and 81 percent were RF positive.
"The relatively large number of patients that substantially improved with
adalimumab, despite the previous use of methotrexate, suggests adalimumab is a
viable treatment regimen for rheumatoid arthritis," said Edward Keystone, MD,
from University of Toronto, in Toronto, Ontario, Canada.
The overproduction of tumor necrosis factor (TNF) in the body can lead to joint
inflammation and destruction. Adalimumab selectively binds up the excess
circulating TNF and removes it from the body.
The purpose of the double-blind, placebo-controlled trial was to examine the
efficacy of adalimumab administered subcutaneously every two weeks to patients
who were partial responders to methotrexate. The study drug was administered
subcutaneously at doses of 20, 40 or 80 mg over a 24-week treatment period.
Injection site reactions occurred in 15.2 percent of the patients treated with
adalimumab, compared to 3.2 percent in patients treated with placebo. While
there were 18 withdrawals from the study, nine were from the placebo group and
nine from the adalimumab arm. Of the total number of withdrawals, eight were
related to adverse events and 10 for lack of efficacy or administrative
reasons.
"The method of administration, i.e., a subcutaneous injection once every two
weeks, makes adalimumab easier to use than current biological therapies that
antagonize the activity of TNF," Dr. Keystone explained. "The fully human
nature of adalimumab is expected to result in fewer side effects and sustained
benefit for the patient," he concluded.

Newbie needs info on diagnosis

2008-02-17 01:47:11

I have all the symptoms of PA - I know I have it and I'm going to
have to go to a rheumatologist soon. What will they do to confirm it?
What type of tests? Do you become disabled from this? I'm 45 M - a
little discouraged.

PS: Side effects of Vioxx (rofecoxib)

2008-02-17 00:13:30

I forgot to mention the side effects I have been having from Vioxx (a
NSAID/COX2 inhibitor). These were: huge thirst, slight
indigestion/acid stomach. I really couldn't get enough to drink and I
was surprised at the acid feeling in my stomach.
Fluid retention is one of the side effects of vioxx mentioned on the
leaflet.
This was in stark contrast to the zero side effects I've had from
Mobic. It's just a pity this isn't working very well anymore.
John

SI joints

2008-02-16 18:55:53

Fred....for three + years I have suffered with sometimes severe SI joint
pain. So far.....my pa has never visited any other part of my body. I
have tried everything but dmards.....with just little relief. Heating
pads help a little. It is such a bad place to feel pain......I
sympathize...
Jayne

Newly discovered I have this.And Hepatitis C.

2008-02-16 08:34:26

Biopsy scheduled.What does this all mean. I know nothing about what
my M.D. thinks I have.And the meds that I need for Hep C are not good
for PA.Meds for PA not good for Hep C.Can anybody point me to a place
where I can learn about this.Or please tell me something about it.Am
I rare or do many people have this?
Help please
Thank you,
Bob

sam-e

2008-02-16 03:41:15

hi,
i tried sam-e last year, and i think i have some still
in the cupboard. my arth has been mild compared to
some of you, but the sam-e didn't help, but it didn't
hurt. i might not have taken it long enough. it's one
of those things i thought i'd try. you never know what
might be the "miracle" for even a few months.
i took evening primrose oil the first year i got sick,
worked great, now it does nothing for me. plus,
the cod liver oil, the shark cartilage, the gingkoba,etc.
etc etc! you know how the drill goes! anyway, that's
my 2 cents worth on the subject
susan in ohio

new member (MTX side-effects)

2008-02-16 01:49:27

I've been on it for about 6 months, and have had no side-effects - except
that my hair is frizzier! Weird.
Kristin Boice

prednisone

2008-02-15 13:14:05

good news! you can get off prednisone and stay off!
about 4 years ago, the only medicine i could take that
worked and didn't hurt my liver was pred. it worked but
i had the moon face and had gained about 50 pounds,
i ate everything i saw! well, my psoriasis was still awful,
and i tried a new derm. he put me on soriatane, which
didn't do squat for the ps. but did miracles for the arth.
i was able to wean off the pred and haven't taken any
since. i take neoral now, it helps both p and a.
have a good weekend
susan in ohio

SAM-e

2008-02-15 06:58:59

Hello list,
I've read a bit about SAM-e being used in place of NSAIDs with
osteoarthritis patients to reduce swelling. Has anyone heard of it
being successful with Psoriatic Arth.? It also is helpful in
treating mild depression. Thanks,
Julie

new member

2008-02-15 06:13:24

Hi
my name is Dianne Briancourt
I was diagnosed with PA about 6 years ago and took sulphasalsine for many of
those years, stopping when I had chemotherapy for breast cancer. All the
arthritis cleared up for one and a half years, but it is now back with a
vengeance and the suphasalasine is not helping. I have been prescribed
methatrexate, and am due to start it tomorrow. I am concerned about the
side effects and would like to hear from anyone who is using methatrexate.

PA diagnosis

2008-02-15 02:18:18

Hi,
Could you please comment on whether or not this sounds like PA. I
realise that it's actually a really silly question and I know that
you don't acutally know the answer. I'd like to hear what you all
think just the same.
Promise I won't quote anyone:-))
It's my son who I suspect may have PA and this is what he tells me
about his back pain that he's had for years.......like about 20 years
and getting worse all the time..
Also could someone please tell me exactly what tests he should have
to determine if he does in fact have it.
thanks for your help,
huggles
lisbeth
The pain is constant, a dull ache, very low, in the tailbone area
Sitting down for any length of time makes it worse, as does standing
up for any length of time. Also walking slowly as in walking round a
museum.
Exercise helps as it loosens it up.
Physio says there is no "core stability" and he has a sway back.
He had psoriasis as a child.

Prednisone

2008-02-14 17:58:01

Leslie writes:
The worst thing is my GP keeps telling me to get off it too but these
rheumatologists prescribe it like candy. You have one doctor telling you
it is bad and another telling you it is ok and you are like - who do I
believe? AGHHH!!!
Leslie,
The key is how much prednisone you are taking. As I understand the
dosage, your body produces the equivelent of 20 mg/day. Any amount you
take LESS THAN 20 mg/day still forces your adrenal cortex to work, which
is important. Obviously, the less you take, the better. I have been
able to reduce my dose to 5 mg and remain reasonably comfortable. When I
flare, I bounce to 20 mg (with my rheumy's permission, referred to as
standing orders) and go quickly back to 5 mg the next day. My allergist
would prefer I take 10 mg every OTHER day but it just doesn't work as
well. Basically, if your at a low dose, the effect on your physiology is
minimal. Hope that helps.
Barry

Psoriatic Newsletter No. 4 - 11/0701

2008-02-14 11:27:49

PSORIATIC ARTHRITIS NEWS AND VIEWS VOL. 1 ISSUE 4 November 7, 2001
PSORIATIC ARTHRITIS MEDICAL NEWS
Hello, and welcome once again to our fourth newsletter. Since I started in
September, my biggest challenge has been to narrow down the absolutely huge
amount of medical information available on the websites that I use. It's a
good problem to have.
For new members interested in browsing past newsletters, just sign in at our
web site

New user for Enbrel question

2008-02-14 06:23:57

Ok, I've finally got my drug store to order my Enbrel. I've already
have the Enbrel "kit" with video take and all, but I really haven't
looked at it yet. Will the video and instructions go through the
mixing part of the Enbrel or how do I find out about it??
thanks,
Scott

Re:PA effecting jaw

2008-02-13 19:42:40

Not only did PA effect my jaw (kind of like TMJ), it also effects my larynx
occasionally. There is a little joint with a bone in there, and it gets
inflammed and swollen like the rest of our joints (although it is rarer than
the rest). You have to wait it out and be very careful because I would be
choking on my food and fluids if not-aspiration pneumonia is not a laughing
matter. Injecting the joint is out of the question due to the location my
rheumy and ent told me.
Michelle

Re:p.a. affecting their jaw?

2008-02-13 17:23:28

I used to have this problem. MTX and Enbrel have made it go away.
Rob Glover

raised liver enzymes

2008-02-13 07:59:22

Cathy and others with raised liver enzymes whilst on MTX. I do not know whether
you have read my previous mail on this subject. Ask your medical practicioner
for a referral to a gastroenterologist for a liver biopsy, and the results may
indicate that it is acceptable to resume MTX. I developed this problem about
two years ago and the MTX was withheld, awaiting the results of a liver biopsy.
The results showed fatty liver, but no fibrosis (permanent scarring). MTX was
the probable cause of the fatty liver, but with no irreversible changes, it was
acceptable to resume MTX. It is closely monitored with monthly blood tests,
which show the same slightly raised liver enzymes continuing but accepted as the
"base line" for me. I am due for another biopsy as it should be performed every
two years. The only other thing is that my weekly MTX dosage can never be
raised above 10 mg. This is augmented by the NSAID Celebrex, with maximum daily
dosage (one 200 mg capsule twice a day)
Regards, Gordon

OT - Embarrassed!

2008-02-13 03:24:59

I'm sooo embarrassed - I *accidently* sent my resume attached to my last
email to the group.
Apologies to all who had to scroll past it!
I have three signatures I use to send e-mail, and try to choose the short
and sweet one to the list, but sometimes, hit the wrong button.
Kristin Boice

Probs with blood levels

2008-02-12 21:38:16

Dear All
I got a phone call from my GP she said there was a problem with my blood results
and asked when I next took my MTX (which I said Saturday), she said to stop
taking it. I next see my consultant in December, perhaps sooner now?? Have any
other of you had to stop taking your MTX, and is it just till the blood tests
settle down? How soon might I start having problems with my joints (mind you I
suppose it just varies from person to person). I have to wait now to hear from
my Rhuematology nurse or GP.
Thanks Cathy
Visit my website at http://www.aliencomputerservices.co.uk/cathy

PA and the use of Embrel

2008-02-12 16:22:26

I just found this group and joined today. I've had PA for several
years and it has been getting worse over the last year. My doctor has
prescribed Embrel but my insurance (Cigna) refused my request. Can
anyone tell me how they were able to get Embrel approved for their
PA. I was told that it was not FDA approved for PA.
Any help would be appreciated
Curtis

responses to chest pain

2008-02-12 13:02:09

I have just read today's incoming mail from the group and would like to thank
all who responded to my cry for advice regarding severe chest pain. It is a
good feeling to know that one is not alone.
Regards, Gordon in Australia

NSAIDS

2008-02-12 09:24:43

I'm not sure if ALL NSAIDS do, but when I was going through pre-op for my
foot surgery, the medical staff made the general statement - no NSAIDS or
asprin 2 weeks before surgery because they thin the blood. Like I said, my
rheumy said that vioxx is fine before surgery, and everything went well. I
took vioxx right up until the surgery.
This was pretty major surgery though - I'm not sure dental surgery would
require the same conditions.
Kristin Boice

OLD LADY HYMNS

2008-02-12 02:33:57

OLD LADY HYMNS
A preacher decided to do something a little different one Sunday
morning.
He said, "Today in church, I am going to say a single word and you are
going to help me preach. Whatever single word I say, I want you to sing
whatever hymn that comes to your mind."
The preacher shouted out, "Cross."
Immediately the congregation started singing in unison, "The Old Rugged
Cross."
The preacher hollered out, "Grace."
The congregation began to sing, "Amazing Grace, How Sweet the Sound."
The preacher said, "Power."
The congregation sang, "There is Power in the Blood."
The preacher said, "Sex."
The congregation fell in total silence.
Everyone was in shock.
They all nervously began to look around at each other afraid to say
anything.
Then all of a sudden from way back of the church a litle old 87 year old
grandmother stood up and began to sing, "Precious Memories."
Have a Blessed Day!

Returning member with a question regarding diet

2008-02-11 19:30:50

Hi everyone, I am a returning member that has been inactive for
awhile due to a hectic schedule. A quick recapp, I am 36, and have
had PA for about 6 years. I went on mtx about 1 yr ago and was on
injectable mtx for about 6 months. I went off it about 3 months ago
for personal reasons. I was fine till a little bit ago but now it is
rearing its ugly head again. To complicate the process I went back to
work FT as a School Librarian (on my feet all day on not so great
carpet padding). I am so frustrated and really do not want to
consider going back on the meds. I also lost 20 lbs recently so I am
hoping this will help as I keep losing more.
Now that that is out of the way, my questions is two fold:
1) I have head mega about diets really helping. I am on slim fast and
eat the two bars a day, plus a dinner that is healthy. I was told
that additives and preservatives really can hurt ya.
2) Has anyone found going to a Podiatrist helps? I have Kaiser
insurance and I really need to invest in some good shoes but can't
afford the $300 they want.
Thanks so much and I look forward to chatting with everyone again.
Judy

Mouth sores

2008-02-11 08:43:34

Hi all, again -- I don't get the mouth sores many of you have mentioned
(maybe because I don't take MTX :) ), but I am subject to recurring cold
sores and fever blisters -- on my lips and at the edge of my nostrils.
regular cold sore medicine doesn't do much good, but a fellow at a local
health store, recommended Lysine. I buy a liquid that can be deopped
into a glass of water and it always clears up the problem. I also have a
Lysine lip balm that I use whenever a fever blister threatens on my
lips. Don't know if Lysine would help with the mouth sores, but anytime
you're on medication you're messing with your digestive system and
Lysine is one of the essential amino acids (so I read), so it might
work. Just a thought. --Jan O', Alaska

Prednisone, Joints that Pop and Cold Weather

2008-02-11 06:56:00

Prednisone (according to my rheumy) can be pretty quick acting and this rheumy
probably thought putting
your pred. back up would take away the pain fairly fast.
Tracy
Tracy-I understand that but I took the 5mg prednisone yesterday and today and I
still feel awful. I haven't felt any change. I don't know if maybe I should take
more? I had my Enbrel shot Thurs. night and that didn't do anything either.
I couldn't sleep last night because I felt so bad. Anyway, I made an
appointment to see a pain management dr. on next Wed.
Does anyone find that their arthritis gets worse when the weather gets colder?
It seems that the weather getting colder brought this on. Also, does anyone
experience the joints popping? When my wrists get real stiff or my fingers the
joints will pop and the pain is excruciating. I used to pop my knuckles when I
was younger and now when ever I hear that sound I just cringe. I sometimes find
that if I move my head for my ear to touch my shoulder my neck will pop as well
- without me putting any pressure on it. I know it isn't good.
Leslie
Please visit our Psoriatic Arthritis informational web page at:
http://www.wpunj.edu/icip/pa, which Professor Robert Harris, one of our generous
members has set up for us.Last month, August,our member of ours known
as:"Cornishpro@..." has done extensive research and published the first
Psoriatic Arthritic Research Newsletter.Many thanks to Jack Nicholas. If you
missed it, be sure to check the archives!
Let's hear from some of you lurkers out there!
G-d's Blessings on you and your loved ones during these anxious times.
Michelle S.
List founder

No claim to fame

2008-02-11 00:34:56

To Larry and Rae - I am not THAT Gordon Eliott and I do get asked that from time
to time. I am merely Gordon with severe PA. Thanks for asking me as this is
the first feedback I have had that my contributions are being read within the
support group.
Regards, Gordon in Australia

shortness of breath

2008-02-10 11:56:28

I have never heard of this being of symptom of pa? Can more give
opinions on this please.....thanks
Jayne

MTX and Hypoglycemia?

2008-02-10 11:46:16

I started MTX about 8 weeks ago. It seems to be helping the PA. My first
monthly blood test post MTX went okay but my second didn't go so well. Have
any of you on MTX developed a low blood sugar count (i.e Hypoglycemia) as a
result of the MTX? Dr. wants me to repeat the blood work in 2 weeks as a
precaution. How concerned should I be about this?
Susie Lee

Newbie Question

2008-02-10 02:44:19

Hi all,
This is a great site and I'm glad I found you all. I've had chronic
back pain for 16 years, diagnosed with psoriasis 11 years ago,
arthritis about 3 years ago and this month a new doc has helped me
pinpoint PA. Today I found this site and have so many questions.
I only have very mild psoriasis on elbows and knees. Probably my
scalp, too, since I have all the symptoms and psoriasis shampoos help
me the most. I have only one or two nail pits, but this week my
finger tips are killing me.
Anyone else have pain with typing? How about a feeling of pain under
the nails that comes and goes? Or a feeling of tight skin under the
nails?
Thanks,
Diane

PA of the spine

2008-02-09 19:39:48

Hi Fred,
Can you recommend a site or article with this information? How did you
find this out? I'd like to show this to my rheumy so that he may consider
enbrel. My spine is painful right now, and the mtx isn't cutting it. I'd
rather go straight to enbrel than increase my dosage of mtx if it won't
help my spine.
Thanks,
Kristin Boice

Re:PA, MTX and flu shots

2008-02-09 18:27:33

<
Hi James, I was on MTX for 3 years and had a flu each year and did well. I
am now taking enbrel, and was told again to be sure to get the flu shot.
nancy in Wisconsin

spinal PA

2008-02-09 13:08:11

Hi Fred - can you expand on this? Is there an article I can print out and
show my rheumy? My spine is in a lot of pain right now, and MTX isn't
cutting it. I'd rather go straight to enbrel than more mtx. if it won't
help my spine.
Thanks,
Kristin Boice

psoriatic arthritis and jaw pain??????????

2008-02-09 07:27:23

hello
i am new to this group, i've been reading the postings for a few weeks
and decided i would like to contribute. i was first diagnosed with
r.a. at 21. a few years later i found i had p.a. every so often i have
a flare up (like, right now). my acupuncturist thinks its seasonal?
the last time i went to the dentist i was diagnosed with tmj. no pain,
just a popping sound on the right side. the right side of my jaw is in
major pain now, along with my neck and shoulders. my doctor does not
think the psoriatic arthritis and tmj are related but i have to
wonder? having all this pain at once is just wrong.
right now i am taking indocin. i am determined to get rid of my pain
without taking any more medication than i have to. also, does anyone
take glucosamine? does it help? if you also are looking for
alternatives, dr andrew weil has a great web sight. i find it helps to
stay positive. i am really glad i found this group, as i'm sure most
of the people i know are exhausted of my interminal complaints.
thanks for ca

PA diagnosis - what type(s) of PA do I have?

2008-02-09 01:53:26

Please could someone suggest what form(s) of PA I have. I know there
are 5 types, but I'm not sure what catergories I fall into. My
symptoms are as follows:
1)in both my thumbs
2) both joints of my right index finger (v bad);
3) the 2nd from top joint of my right little finger (v. v. bad) -
can't make a 1st with my right hand;
4) both of my wrists/back of my hands are weak and have very little
movement - this is where my PA 1st started wh